A last word re the CRPS (for now!)

I didn't write the CRPS post below to elicit sympathy, my friends. I wrote it for a number of reasons.

1. To tell you a little about CRPS.
2. To let you know a little more about the programme at Bath.
3. To inform any would be investigators out there that just because people look normal, it does not follow that they are fit and healthy.
4. Because I was appalled that every single comment in that article seemed to think that the man was a fraud and lying about his condition, and because none of them had a clue what CRPS actually was. They even called on the judge who awarded him compensation to resign.
5. I am sick to death of having to explain CRPS to people I meet in the street. The eyes tend to glaze over, and I can see the thought...."she has lost her marbles" flash through the brain. I usually settle for "I am fine, thanks" or "I have a wonky knee." This is also one of the reasons people with it start to withdraw from social events. Like me.
6. The implication out there is that we are malingerers.
7. I spent the last few days in Bath just hoping and praying the consultants would walk in and say that they had made a mistake and that I didn't have it after all. I would be more than thrilled if they had decided that they had made a mistake. They didn't.
8. Every person who reads what I wrote is one more person who will understand better, and perhaps be able to spread the knowledge about a little. Knowledge is a powerful thing.
9. CRPS or RSD needs to be out there in the public more. That way there will be more money for research and hopefully a cure one day. At the moment, there is no cure.
10. When I get miffed, the fingers fly. I just emailed the paper. Let us see if they manage to respond.

There. That feels better, she says, dusting off the hands. I do believe I just entered warrior mode again.