So I am back from Bath and the visit to the experts at the RNHRD. (Royal National Hospital for Rheumatic Diseases - a mouthful at the best of times.) And I am weary. It has been a long day, and for some reason known best to them, my appointments were 3.5 hours apart. Glynis, Peter and I had time for lunch and a wander round the shops. I do love Bath. It is just the right size for me.
They are pleased. The word is "shift". There has been a noticeable shift. Probably in my attitude more than anything. Remember my word for the year? Quiet. Well, the crux of it all is that even with my formidable will and determination, I am not one of the 10% who get rid of CRPS. And after 2.5 years, I am starting to accept that, and focus rather on the ways to minimise it's effects on my life.
The fact that my hair has stripes, a new style, and I was wearing a classy new gold coat and looked quite different also helped, I think. And so I now have more exercises and instructions which will be difficult to conquer, but the will is there. A small bit of that steely determination remains.
I go back to see them in July. And the word "pacing" cropped up again, and "relaxation techniques" made a few appearances as well. Sigh. I know all the theory, you see, I just don't practice it. It is far simpler to pick up another how to book and read about it, or research it instead of actually doing it. I know, I know. I am an idiot. I am going to be good.
The Kindle idea came up too, and it was very interesting to hear what they had to say. Apparently it is used by quite a few of the patients, because it is one thing. One page, instead of a whole book, and you can't see what has been or what is to be, and the number of pages is not relevant either. Apparently changing the font and colour of the background can also work. So it looks as if a Kindle could be in my future. If it helps, then that would be great. Anything that helps the focus or concentration would be a real asset. We will see.
Changing the subject entirely now.................
Do American children generally sleep in double beds? Big adult size beds for more than one person? I ask, because so many of the photos I see of children's rooms on blogs have double beds in them. Here they sleep in single beds when they grow out of their cots (cribs) and only have double beds when they are adults. It is the same in most places, like Europe, SA, Aus and NZ. I wondered if it was because the houses in the States are so much bigger? Don't they have bunk beds? (2 beds on top of each other, which provide endless possibilities for forts etc!) Hmmmmm. Just wondering. It seems strange to me, you see, the idea of little kids in huge beds, and how on earth do they learn to make them??? They are so big!
Anyway. As you can see, the mind is leaping all over the place tonight. I need to go to bed because I was up at 4am with an unfortunate attack of "you have eaten something which disagrees with your insides". Which means that I had approximately 3 hours sleep last night. So it is just as well I had friends to take me to Bath, because I dozed on the way there and on the way back.
I am getting old.